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Forum » Hi boyos, im down, as there is a strong chance i might be around for much longer
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Thread: Hi boyos, im down, as there is a strong chance i might be around for much longer

post 1571153981 01-14-2019, 12:04 PM
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  1. Rad203
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Hi boyos, im down, as there is a strong chance i might be around for much longer

First off, im quite a infrequent user of this forum, i used to browse here a lot a few years ago and even now i do it a fair amount still. So many of you may not know me or anything like that. But anyhow, im currently in the process of seeing a neurologist, after a recent GP appointment where what happened was i was told he couldnt rule out me having motor neurone disease, or ALS as many know it. What stephen hawking had apart from the fact its very unlikely to live 5 decades like he did as it normally kills in 3-5 years. Earlier so when you have Bublar onset, which is when it starts from the mouth region/throat which is likely where mine has started from going off my worrying symptoms.
Im 20 years old Misc. Havent done **** with my life and unsurprisingly im scared. My family think its anxiety but that doesnt cause my fingers to get stuck, my mouth to slur words and my tongue to be weaker and skinnier on one side and my whole body to have muscle spasms. I dunno why im making this thread, just wanted to leave a memory of me on here if the worse happens (and its increasingly looking likely) and just say thanks for the laughs on the way out.
Will update the thread when im aware of 100% whats happening but my GP looked quite concerned to say the very least so ive lost hope at this point.
post 1571154211 01-14-2019, 12:07 PM
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Good luck Bro, hopefully it's a false alarm.
post 1571154321 01-14-2019, 12:08 PM
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  1. UACdarknova
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Sorry to hear. Keep us updated. What were the fist symptoms you started to notice?
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post 1571154451 01-14-2019, 12:09 PM
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Jeesus...that sucks bro. I wish you all the best.
See monster0ultra's sig
post 1571154611 01-14-2019, 12:11 PM
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Wishing you the best man, I hope it's not what you fear.
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<HTC>
post 1571155311 01-14-2019, 12:20 PM
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Originally Posted By UACdarknova⏩
Sorry to hear. Keep us updated. What were the fist symptoms you started to notice?
well the first ones i started to notice that made me see a doctor was my left thumb felt janky, like something was pulling on it when I tried to move it. a day later this spread to my fingers as well in the hand with the same tugging sensation. I decided to see the doctor at this point as i had been ill on and off with cold and flu for the last 4 or so months. i also had for the last 3 weeks had a lump in my throat but i put that down to nerves. Well since the fingers turned janky i started feeling muscle spasms and twitches literally all over my body especially in my legs, left tricep and wrists. The doc guessed carpal tunnel syndrome as he didnt really see the twitches i described and just sent me off for a blood test. then the next day my right calf felt weaker like id been doing calf raises or something. then i thought maybe i should look at my tongue as i have been stuttering and stubbling words on the odd occasion, and thats when i saw the indention in my tongue and loads of the twitches across it. More to it but i dunno how many people want essays.

Cliffs
had weak fingers and thumb
doc thought it was okay
never checked tongue, looked and acted odd
post 1571155361 01-14-2019, 12:21 PM
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  1. Roldz
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Best of luck to you bro. I'll pour some ice water on sloots in white tees in your honor.
FL > PA
post 1571155411 01-14-2019, 12:22 PM
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Sorry to hear this. Hopefully it is something else and you can find the appropriate treatment.
Currently: Marathon training (Run with Hal - Advanced I); The Work/Body Beast hybrid

Next race: Ohio 10K - September 12, 2021
post 1571155441 01-14-2019, 12:22 PM
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Originally Posted By Rad203⏩
well the first ones i started to notice that made me see a doctor was my left thumb felt janky, like something was pulling on it when I tried to move it. a day later this spread to my fingers as well in the hand with the same tugging sensation. I decided to see the doctor at this point as i had been ill on and off with cold and flu for the last 4 or so months. i also had for the last 3 weeks had a lump in my throat but i put that down to nerves. Well since the fingers turned janky i started feeling muscle spasms and twitches literally all over my body especially in my legs, left tricep and wrists. The doc guessed carpal tunnel syndrome as he didnt really see the twitches i described and just sent me off for a blood test. then the next day my right calf felt weaker like id been doing calf raises or something. then i thought maybe i should look at my tongue as i have been stuttering and stubbling words on the odd occasion, and thats when i saw the indention in my tongue and loads of the twitches across it. More to it but i dunno how many people want essays.

Cliffs
had weak fingers and thumb
doc thought it was okay
never checked tongue, looked and acted odd
Have you seen a specialist yet or just your family doctor?
Are you aware of any other diseases that might not be as sever as ALS that could cause these problems?
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post 1571155571 01-14-2019, 12:23 PM
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Are you aware that there are people in this world that have a severe medical condition which causes them to be that way? My mother for instance is one of those people. She is a truck driver that has bad knees and a bad back from driving the truck but you probably do not care about that case either. Oh well I am not one of those people I am 6'4" 245lbs and I exercise every day. I would love to see you say something like to my mother in front of me. Probably never happen though you are probably just an internet tough guy. I doubt very seriously you would say that to someones face. Just my thought.What do you think. Oh I am sorry you probably do not have a brain. I on the other hand will be happy to buy you a plane ticket to come here and see if you have the nerve to say that to someone I know.
post 1571155601 01-14-2019, 12:23 PM
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Good luck op, hopefully you will update with some good news.
post 1571155661 01-14-2019, 12:24 PM
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Best of luck
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post 1571155781 01-14-2019, 12:25 PM
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Wut.
Currently: Marathon training (Run with Hal - Advanced I); The Work/Body Beast hybrid

Next race: Ohio 10K - September 12, 2021
post 1571155791 01-14-2019, 12:25 PM
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Originally Posted By nothingshocking⏩
Good luck Bro, hopefully it's a false alarm.
Hopefully. Just when you actually have your body do this, I know this isnt something just in my head, the worse thing is everyone thinks im just have constant anxiety attacks and i feel like im quite alone on this at the moment.
post 1571156281 01-14-2019, 12:30 PM
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Originally Posted By UACdarknova⏩
Have you seen a specialist yet or just your family doctor?
Are you aware of any other diseases that might not be as sever as ALS that could cause these problems?
im hopefully getting a neurologist relatively soon as waiting to see one on the NHS would literally take months so im going private.There are many, but if my concerns are correct, with both upper and lower motor neurone damage signs (basically lower is evidence of wasting ie. like my tongue which my family doc definitely could notice, upper is tightness in the muscle such as in my fingers) its considerably increases the risk it is this.
post 1571156351 01-14-2019, 12:31 PM
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Hoping the best for you, bro.
The closer we approach the uncertainty of life's ending the more we wish to trade all of the things we have acquired in exchange for all of the things we have lost: wealth for youth, knowledge for fresh curiosity, resignation for hope. We'd trade our wisdom for new experiences, but it is wisdom that will teach us that at the end of the road the only new experience is death.
post 1571156531 01-14-2019, 12:33 PM
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  1. nothingshocking
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Originally Posted By RedRusty⏩
Wut.
post 1571156601 01-14-2019, 12:34 PM
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I have had similar symptoms. Probably stress and anxiety.
post 1571156641 01-14-2019, 12:35 PM
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hoping it turns out to be something very treatable brah, keep your head up and try not to get yourself too worked up until you see the neurologist and get a diagnosis.
post 1571156651 01-14-2019, 12:35 PM
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Sorry brah. My only advice for now is try not to conclusions yet, all you will do with that in the meantime is torment yourself. Do what you can to stay positive and get to a specialist stat. And know that the misk always has your back and will support you however we can - it's what we do in times like this.
post 1571156801 01-14-2019, 12:36 PM
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Rooting for you brah, hopefully it’s something else
post 1571156951 01-14-2019, 12:38 PM
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Originally Posted By Rad203⏩
im hopefully getting a neurologist relatively soon aswaiting to see one on the NHS would literally take monthsso im going private.There are many, but if my concerns are correct, with both upper and lower motor neurone damage signs (basically lower is evidence of wasting ie. like my tongue which my family doc definitely could notice, upper is tightness in the muscle such as in my fingers) its considerably increases the risk it is this.
I hope it's a false alarm but I find it hard to believe that you'd be made to wait months to see a specialist if your GP is as concerned as you say.
fist yourself
post 1571159531 01-14-2019, 01:05 PM
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Originally Posted By BustaCapp⏩
I hope it's a false alarm but I find it hard to believe that you'd be made to wait months to see a specialist if your GP is as concerned as you say.
he said he couldnt rule it out and that referrals could take weeks even months. I checked the local specialist hospitals near me and they had all be clogged up by months so.
post 1571159591 01-14-2019, 01:06 PM
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anyway im off to sleep im exhausted and im struggling to do things at the moment. see ya tomorrow fellas
post 1571159631 01-14-2019, 01:07 PM
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Originally Posted By nothingshocking⏩
I was wutting the red who went batchit up there with his threats, not OP.
Currently: Marathon training (Run with Hal - Advanced I); The Work/Body Beast hybrid

Next race: Ohio 10K - September 12, 2021
post 1571160091 01-14-2019, 01:12 PM
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Keep your head up OP. One thing I will say is that anxiety can be much, much more powerful than any of us can ever imagine. It can literally control you and your thoughts and your body. Stay positive until you know for sure.
OG Crew
post 1571162711 01-14-2019, 01:37 PM
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I am really sorry to hear that OP. Hold on though, there's still hope that it's not ALS or anything so severe so keep your head up as best you can. Hoping for the best and subbed for updates. Good luck!
post 1571163461 01-14-2019, 01:44 PM
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Will pray for you brah, we all too easily fall into the mindset of taking things for granted. Best thing you can do right now is get out of your comfort zone and go live it up while you can.
Height/Weight: Undisclosed to prevent possible triggering.

*Just finished cutting starting Bulking phase crew*
post 1571165511 01-14-2019, 02:03 PM
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I had kind of an ALS scare a few years back....no muscle wasting but, turns out I had, and still battle chronic lymes disease. Did the EEG, EMG, etc...

I am not saying you shouldn't be concerned and could have something going on...but I will say this...stress and anxiety does play a factor..for example the muscle twitching..dude I've had spans where every at any given time of the day I could find some muscle twitch on my body, you can see them just by looking at them...the more I focus on them the more prevalent they become.

I will say this, for you at 20 years of age to have ALS would be EXTREMELY rare. Try and keep your head up. Could be a ton of things.

When someone says "think of an animal with hooves".....it's probably not a zebra...it's probably a horse. Good luck bro, I'll pray for ya.
PHILLIES/EAGLES CREW
{} MFC {}
post 1571167381 01-14-2019, 02:21 PM
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Originally Posted By RedRusty⏩
I was wutting the red who went batchit up there with his threats, not OP.
you are not aware.


that's a copy paste lol
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