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Misc is my support system. Getting a stem cell transplant and some chemo again
07-23-2021, 08:09 AM
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#61
- WiseOldApe
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Originally Posted By SmillironS⏩
Yeah same i feel like crap knowing that a fellow misc brah is going through such a severe circumstance whilst i was feeling men today for no reason.I’m at a loss for words OP and for that I’m very sorry, I wish I could come up with something even mildly comforting but I feel sick to my stomach after reading all that and angry at myself for having the audacity to ever whine about anything in my life while a good dude like you is going through this. You’re gonna make it bro, give it hell.
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07-23-2021, 08:22 AM
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#62
- tryn2change
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Rooting for you brah!
HTC 4 Life: Face first tongue out!
07-23-2021, 08:25 AM
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#63
- ShayZ
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[QUOTE=DTRrex post_id=1643429253]I remember your original posts when you were first diagnosed with HL. Sorry that you've been dealing with so much, but I'm glad and hopeful that you and your med care team are starting to get some answers and working toward a solution.
Cancer runs pretty prolifically in my family, especially NHL, so I'm sadly very familiar with it and the sides that intense chemo and radiation cause.
Keep pushing and keep us updated on everything.
Best wishes my dude.[/QUOTE]Thank you. The crazyness is everyone in my family is fairly healthy and normal... I think this all started at age 7 when I got typhoid fever. I think it wrecked my immune system for life.
[QUOTE=Antoine99 post_id=1643429643]GL OP
Ever look into intravenous vitamin C therapy? If you need ideas maybe try that.[/QUOTE]I havent, I read up about a Vit d protocol used in Brazil. Ill prob go super hollisitic after this transplant though. I even went raw vegan for about a month a few months back, and tbh it made me feel a lot better.
[QUOTE=Autumnal post_id=1643430393]Man I literally thought about you today for the first time in like a decade, didn’t know you were still on this site. Winterwolf/Wintermule. I was talking about aphantasia with someone and remembered trying to do guided meditation with you in the past and you thought it was ridiculous, I thought about the possibility you have it. Weird.
Sorry to hear about your cancer. I worked in a hospital with a big BMT focus and did nursing in that area often. Best of luck brah. I’ll be honest with you, a lot of immediate post-SCT patients don’t seem to have been adequately warned about the sides. The nadir phase will be awful (at least for the majority, some people have minimal sides) but you’ll get through it. If you’ve gone through intensive chemotherapy that may have been worse, and the worst is maybe day +7-14 after the tx
Strange to see this post under the circumstances. Also congrats on the kids boyo[/QUOTE]Thats what scares me. My doctor makes it sound so nonchalant. I am sure its his job to be comforting. But I dunno.
[QUOTE=Cartiac post_id=1643430863]This is a unique community, maybe it's not as big of a toxic shythole as it used to be but it is still the best darn toxic shythole around and everyone left in this glorious toxic shythole has your back and will help you get through this difficult time.
You are clearly a fighter pushing past those without the same desire to break through barriers as yourself. Stem cell technology is world changing especially in the hands of a truly caring practitioner. The fight may be hard, but you WILL win this fight as this shythole has your back! pics of wife or no?[/QUOTE]Lol, no pics of wife, Ill just say I am happy and so blessed with two amazing beautiful baby girls. (Never imagined myself saying that 5 years ago lmao). But girls are incredible. I know one day guys will want them, but for now, they are my little sweethearts and my lifeline.
[QUOTE=AddictiveMuscle post_id=1643431413]keep yo head up king. i remember your threads way back when about starting your business importing and selling phone shyt. best of luck with everything man. life comes at us hard. we must persevere an keeping moving forward. there is light at the end of the tunnel just got to sift through this ****.
Was this like family history or just an off chance. i know your life must of been super stressed and along with diet and lifestyle was pretty hectic. certain things accelerate the body when our bodies are under immense stress.[/QUOTE]Off chance, no one in my fam has anything similar, no cancer history.
I still am in the wholesale cell parts business. I am so thankful because I can now take 3-6 months to recover and not worry about work. My team is incredible. I am soooo lucky.
[QUOTE=tcatcrawler post_id=1643431563]you made the misc a fun place to be. you probably saved my life by keeping me entertained/distracted.
best of luck OP.[/QUOTE]Wut, I thought you got permabanned. I dont know if I saved anyones life, but I sincerely appreciate you saying that. I am not kidding when I saw I have tears running down my face as I type this. Granted its the culmination of everything, but Im just excited for the next step in my life and putting this all behind me.
[QUOTE=maverickTT1 post_id=1643431783]You’ll make it, legend![/QUOTE]<3
[QUOTE=LethalGunz34 post_id=1643432413]All the best, bro!!!! Keep your chin up!
For the unawares, OP made this years ago.
[youtube]um8R3DGNa88[/youube][/QUOTE]It's up bro, never going to look down.
[QUOTE=BearyManilowe post_id=1643432473]Damn son, in on support system. This sounds like a super f'd up condition, but you'll pull through brah.[/QUOTE]God bless, thank you.
[QUOTE=Shysty021 post_id=1643432713]Jesus I got exhausted jsut reading all of it....not sure how u live with it
Its like you have to be your own agent and manage the doctors[/QUOTE]lol, its def a lot. I have a dr appointment today, blood work saturday, another appointment Monday, another tues, bloodwork thurs, and neupogen shots thursday. Its nonstop, but its just a phase in life, and this too shall pass.
[QUOTE=jreacher post_id=1643432963]Praying for you, man. Best wishes to you and your family.
I have a strong feeling everything will turn out well for you. You have already proven you are a survivor and overcomer.
I'm glad the misc can be here for you.[/QUOTE]I got this, and am so thankful for you guys.
[QUOTE=shaqfu post_id=1643433433]Stay strong for those babies, they need their daddy! How’s your wife handling it?[/QUOTE]They are legit my everything. Jaan is the hindi word for life. They are my jaans.
[QUOTE=Achilles87 post_id=1643434393][YouTube]2dxhgJ9THqA[/YouTue][/QUOTE]damn, I wonder how hes doing.
[QUOTE=Samraiwise post_id=1643434403]Yes, I know what you are talking about, not about your pain but that most of the time misc is a bitch while sometimes, at the most important timing, it helps us to keep moving and kicking.
You don't need to give us cliffs anymore, just tell us whatever you want to tell us, everything and all the things, anytime and all the time. We will read all of your posts.
And I must add, you look good, 80% of guys your age don't have the muscle mass and vascularity you showed us in the vid. And your face and expressions when you delivered it to us too.
My mother (85) was supposed to be dead five years ago from an incurable disease she got[b]according to her first doctor[/b]. But she made it,[b]much to the chagrin of that doctor (j/k [img]//assets.bodybuilding.com/forum/images/smilies/tongue.gif[/img])[/b], never doubt that she will be here tomorrow, and be always laughing in our weekly conversation on the phone,[i]damn COVID-19...can't see her in person[/i].
Believe yourself, not the science, and not everything the doctors have to say. Don't make yourself a number in the statistics, you are different and unique in this universe. Don't ever lose hope for you and your beloved family, especially your kids, your legacy.
Take care, we will be here always for you, my friend, my brother. *bow*
[img]https://firebasestorage.googleapis.com/v0/b/samraiwise-17c91.appspot.com/o/smilie%2Fsm_friends.gif?alt=media&token=017d017e-07dd-407a-a950-b49066c67237[/img][/QUOTE]I am so happy that your mom kicked ass and is still around. I wanna be like her one day. I cannot even fathom living that long with as much stuff as I have going on, but people like her give me the inspiration to get there.
[QUOTE=redraider86 post_id=1643437043]Have you had these before? You know what to expect?
Feels like yesterday this was starting and the wifey was asking if I'd experienced anything like it post-chemo. You've got a real one, she loves you to the moon and back. We've all got your back and you're going to beat this **** once again.
Only if you're comfortable doing so, please send contact info via PM. Would like to put something together for you.[/QUOTE]Yea, I had neupogen and neulasta after chemo, so I am use to them, granted, not this many shots. Oh, please dont tell her I posted here. I have to hide feelings from them. I cannot let them know I am ever weak or down. This is the only place I can post my real feelings. I have to be a warrior for them.
[QUOTE=Airror post_id=1643440803]I remember you from back in the day.
You're a tough dude and you've already made it this far and fought through so much, I'm sure you've got this. Stay positive.[/QUOTE]Yes sir
[QUOTE=Jhamaican post_id=1643440933]Best of luck bro hope you beat that ****
Don't mean this is a harsh way
Weren't you the guy that was making millions from some online cellphone case biz?
Really gets home that time and health are our most valuable assets. Money only a distant third[/QUOTE]You can buy fun cars, a beautiful house, and everything else, but you cannot buy your health. I would trade all the money to be a middle income healthy man so I know I can be there for my babies.
[QUOTE=darkninja67 post_id=1643440953]Good to see a good poster here still alive and kicking.
Thoughts for a full speedy recovery.[/QUOTE]6 months from now, Ill be back to normal, I believe it.
[QUOTE=WiseOldApe post_id=1643441473]OP I remember you from way back in the day - stay strong, focused, and remember that there will be a life after this treatment.[/QUOTE]Yep. Ill be back stronger and better
[QUOTE=monster0ultra post_id=1643441753]OP is one of the hardest workers on the Misc and now he has cancer.
GMiscer was right all along.[/QUOTE]Damn, what did Gmiscer say?
[QUOTE=SmillironS post_id=1643441823]I’m at a loss for words OP and for that I’m very sorry, I wish I could come up with something even mildly comforting but I feel sick to my stomach after reading all that and angry at myself for having the audacity to ever whine about anything in my life while a good dude like you is going through this. You’re gonna make it bro, give it hell.[/QUOTE]You know, I think we are alllll soo lucky and blessed. I join ******** groups, and there are people who are in constant pain, who are attached to tubes all day long, who dont know how they will pay for a co pay.
I at leats know my diagnosis, I finally have a treatment plan, and I am financially stable to not have to look at any work for 6 months, a year, 2 years, whatever. I can just relax, focus on me, and my recovery.
I dont like to think of the negatives, granted I am human and I can wish it wasnt like this, but looking at the positives keeps me in check.
Cancer runs pretty prolifically in my family, especially NHL, so I'm sadly very familiar with it and the sides that intense chemo and radiation cause.
Keep pushing and keep us updated on everything.
Best wishes my dude.[/QUOTE]Thank you. The crazyness is everyone in my family is fairly healthy and normal... I think this all started at age 7 when I got typhoid fever. I think it wrecked my immune system for life.
[QUOTE=Antoine99 post_id=1643429643]GL OP
Ever look into intravenous vitamin C therapy? If you need ideas maybe try that.[/QUOTE]I havent, I read up about a Vit d protocol used in Brazil. Ill prob go super hollisitic after this transplant though. I even went raw vegan for about a month a few months back, and tbh it made me feel a lot better.
[QUOTE=Autumnal post_id=1643430393]Man I literally thought about you today for the first time in like a decade, didn’t know you were still on this site. Winterwolf/Wintermule. I was talking about aphantasia with someone and remembered trying to do guided meditation with you in the past and you thought it was ridiculous, I thought about the possibility you have it. Weird.
Sorry to hear about your cancer. I worked in a hospital with a big BMT focus and did nursing in that area often. Best of luck brah. I’ll be honest with you, a lot of immediate post-SCT patients don’t seem to have been adequately warned about the sides. The nadir phase will be awful (at least for the majority, some people have minimal sides) but you’ll get through it. If you’ve gone through intensive chemotherapy that may have been worse, and the worst is maybe day +7-14 after the tx
Strange to see this post under the circumstances. Also congrats on the kids boyo[/QUOTE]Thats what scares me. My doctor makes it sound so nonchalant. I am sure its his job to be comforting. But I dunno.
[QUOTE=Cartiac post_id=1643430863]This is a unique community, maybe it's not as big of a toxic shythole as it used to be but it is still the best darn toxic shythole around and everyone left in this glorious toxic shythole has your back and will help you get through this difficult time.
You are clearly a fighter pushing past those without the same desire to break through barriers as yourself. Stem cell technology is world changing especially in the hands of a truly caring practitioner. The fight may be hard, but you WILL win this fight as this shythole has your back! pics of wife or no?[/QUOTE]Lol, no pics of wife, Ill just say I am happy and so blessed with two amazing beautiful baby girls. (Never imagined myself saying that 5 years ago lmao). But girls are incredible. I know one day guys will want them, but for now, they are my little sweethearts and my lifeline.
[QUOTE=AddictiveMuscle post_id=1643431413]keep yo head up king. i remember your threads way back when about starting your business importing and selling phone shyt. best of luck with everything man. life comes at us hard. we must persevere an keeping moving forward. there is light at the end of the tunnel just got to sift through this ****.
Was this like family history or just an off chance. i know your life must of been super stressed and along with diet and lifestyle was pretty hectic. certain things accelerate the body when our bodies are under immense stress.[/QUOTE]Off chance, no one in my fam has anything similar, no cancer history.
I still am in the wholesale cell parts business. I am so thankful because I can now take 3-6 months to recover and not worry about work. My team is incredible. I am soooo lucky.
[QUOTE=tcatcrawler post_id=1643431563]you made the misc a fun place to be. you probably saved my life by keeping me entertained/distracted.
best of luck OP.[/QUOTE]Wut, I thought you got permabanned. I dont know if I saved anyones life, but I sincerely appreciate you saying that. I am not kidding when I saw I have tears running down my face as I type this. Granted its the culmination of everything, but Im just excited for the next step in my life and putting this all behind me.
[QUOTE=maverickTT1 post_id=1643431783]You’ll make it, legend![/QUOTE]<3
[QUOTE=LethalGunz34 post_id=1643432413]All the best, bro!!!! Keep your chin up!
For the unawares, OP made this years ago.
[youtube]um8R3DGNa88[/youube][/QUOTE]It's up bro, never going to look down.
[QUOTE=BearyManilowe post_id=1643432473]Damn son, in on support system. This sounds like a super f'd up condition, but you'll pull through brah.[/QUOTE]God bless, thank you.
[QUOTE=Shysty021 post_id=1643432713]Jesus I got exhausted jsut reading all of it....not sure how u live with it
Its like you have to be your own agent and manage the doctors[/QUOTE]lol, its def a lot. I have a dr appointment today, blood work saturday, another appointment Monday, another tues, bloodwork thurs, and neupogen shots thursday. Its nonstop, but its just a phase in life, and this too shall pass.
[QUOTE=jreacher post_id=1643432963]Praying for you, man. Best wishes to you and your family.
I have a strong feeling everything will turn out well for you. You have already proven you are a survivor and overcomer.
I'm glad the misc can be here for you.[/QUOTE]I got this, and am so thankful for you guys.
[QUOTE=shaqfu post_id=1643433433]Stay strong for those babies, they need their daddy! How’s your wife handling it?[/QUOTE]They are legit my everything. Jaan is the hindi word for life. They are my jaans.
[QUOTE=Achilles87 post_id=1643434393][YouTube]2dxhgJ9THqA[/YouTue][/QUOTE]damn, I wonder how hes doing.
[QUOTE=Samraiwise post_id=1643434403]Yes, I know what you are talking about, not about your pain but that most of the time misc is a bitch while sometimes, at the most important timing, it helps us to keep moving and kicking.
You don't need to give us cliffs anymore, just tell us whatever you want to tell us, everything and all the things, anytime and all the time. We will read all of your posts.
And I must add, you look good, 80% of guys your age don't have the muscle mass and vascularity you showed us in the vid. And your face and expressions when you delivered it to us too.
My mother (85) was supposed to be dead five years ago from an incurable disease she got[b]according to her first doctor[/b]. But she made it,[b]much to the chagrin of that doctor (j/k [img]//assets.bodybuilding.com/forum/images/smilies/tongue.gif[/img])[/b], never doubt that she will be here tomorrow, and be always laughing in our weekly conversation on the phone,[i]damn COVID-19...can't see her in person[/i].
Believe yourself, not the science, and not everything the doctors have to say. Don't make yourself a number in the statistics, you are different and unique in this universe. Don't ever lose hope for you and your beloved family, especially your kids, your legacy.
Take care, we will be here always for you, my friend, my brother. *bow*
[img]https://firebasestorage.googleapis.com/v0/b/samraiwise-17c91.appspot.com/o/smilie%2Fsm_friends.gif?alt=media&token=017d017e-07dd-407a-a950-b49066c67237[/img][/QUOTE]I am so happy that your mom kicked ass and is still around. I wanna be like her one day. I cannot even fathom living that long with as much stuff as I have going on, but people like her give me the inspiration to get there.
[QUOTE=redraider86 post_id=1643437043]Have you had these before? You know what to expect?
Feels like yesterday this was starting and the wifey was asking if I'd experienced anything like it post-chemo. You've got a real one, she loves you to the moon and back. We've all got your back and you're going to beat this **** once again.
Only if you're comfortable doing so, please send contact info via PM. Would like to put something together for you.[/QUOTE]Yea, I had neupogen and neulasta after chemo, so I am use to them, granted, not this many shots. Oh, please dont tell her I posted here. I have to hide feelings from them. I cannot let them know I am ever weak or down. This is the only place I can post my real feelings. I have to be a warrior for them.
[QUOTE=Airror post_id=1643440803]I remember you from back in the day.
You're a tough dude and you've already made it this far and fought through so much, I'm sure you've got this. Stay positive.[/QUOTE]Yes sir
[QUOTE=Jhamaican post_id=1643440933]Best of luck bro hope you beat that ****
Don't mean this is a harsh way
Weren't you the guy that was making millions from some online cellphone case biz?
Really gets home that time and health are our most valuable assets. Money only a distant third[/QUOTE]You can buy fun cars, a beautiful house, and everything else, but you cannot buy your health. I would trade all the money to be a middle income healthy man so I know I can be there for my babies.
[QUOTE=darkninja67 post_id=1643440953]Good to see a good poster here still alive and kicking.
Thoughts for a full speedy recovery.[/QUOTE]6 months from now, Ill be back to normal, I believe it.
[QUOTE=WiseOldApe post_id=1643441473]OP I remember you from way back in the day - stay strong, focused, and remember that there will be a life after this treatment.[/QUOTE]Yep. Ill be back stronger and better
[QUOTE=monster0ultra post_id=1643441753]OP is one of the hardest workers on the Misc and now he has cancer.
GMiscer was right all along.[/QUOTE]Damn, what did Gmiscer say?
[QUOTE=SmillironS post_id=1643441823]I’m at a loss for words OP and for that I’m very sorry, I wish I could come up with something even mildly comforting but I feel sick to my stomach after reading all that and angry at myself for having the audacity to ever whine about anything in my life while a good dude like you is going through this. You’re gonna make it bro, give it hell.[/QUOTE]You know, I think we are alllll soo lucky and blessed. I join ******** groups, and there are people who are in constant pain, who are attached to tubes all day long, who dont know how they will pay for a co pay.
I at leats know my diagnosis, I finally have a treatment plan, and I am financially stable to not have to look at any work for 6 months, a year, 2 years, whatever. I can just relax, focus on me, and my recovery.
I dont like to think of the negatives, granted I am human and I can wish it wasnt like this, but looking at the positives keeps me in check.
RIP mainsqueeze530
y u leave us so early bro?
07-23-2021, 08:26 AM
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#64
- DrumsNotDead
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damn man that's terrible, but i think you knowing what it is or looks like it is is a great thing. now you have a battle plan. you seem to have the mental strength to beat this thing, just keep at it. the misc has your back all the way man, stay strong you got this and no matter what life takes from you just keep fighting and stay mentally strong.
07-23-2021, 08:36 AM
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#65
- redraider86
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Originally Posted By ShayZ⏩
I would never! My point was that you've got a great support system - and that I'm glad you finally have an answer.Yea, I had neupogen and neulasta after chemo, so I am use to them, granted, not this many shots. Oh, please dont tell her I posted here. I have to hide feelings from them. I cannot let them know I am ever weak or down. This is the only place I can post my real feelings. I have to be a warrior for them.
Okay cool, I wasn't sure if you were familiar with them. Claritin helped a ton with the pain but not everyone deals with the side effects.
Train hard, train smart, have fun!
"I'm not autistic- I'm ARTISTIC." - etet1919
07-23-2021, 08:38 AM
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#66
Always feel free to message me if you need to talk. I’m a good listener and don’t give unsolicited advice. Here for you fam <3
SuperHercules crew
cancer survivor crew
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Cat crew
Insomniac crew
07-23-2021, 08:51 AM
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#67
- RealAesthetic
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Absolute legend and OG miscer
Wishing you all the best brother, stay strong, we’re all here for you.
Will be thinking about you brah no homo
Wishing you all the best brother, stay strong, we’re all here for you.
Will be thinking about you brah no homo
***Canadian Crew***
S 365 D 585 B 315
misc resident sky tradie
07-23-2021, 08:53 AM
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#68
07-23-2021, 09:00 AM
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#69
Originally Posted By ShayZ⏩
Tons of positive vibes being sent your way OP! Best of luck and I hope this is the miracle you need.I checked all the boxes for this disease which had only been clinically reported to exist in 1/10,000,000 people. What were the odds? I started doing some research on the disease and kept reading that there is no cure for it, but then I stumbled upon a clinical report where someone was treated with a Stem Cell transplant. I decided to call Emory and moved all my physicians to be part of the same team. I met an incredible Hematologist who specialized in Bone Marrow transplants. On our first visit he said he had never heard of or seen a Cutis Laxa patient, but he concurred that I likely did have it, and he too felt that a BMT would halt the progression of the disease. I ended up seeing 4 more specialists at Emory including dermatologist, rheumatologist, pulmonologist, and geneticist. His theory was that I had remnant lymphoma which was attacking my good cells via a paraprotein and destroying my lungs, destroying my skins elastin, destroying my joints (Rhematoid arthritis), and basically killing me slowly. He was right. It is kind of like a myeloma, I have all the markets for myeloma, but it isnt an actual cancer. But treated like cancer.
Finally today, he confirmed that we will proceed with a stem cell transplant. Itll include 7 days of Neupogen shots to boost my bone marrow. Then 2-3 days of bone marrow collection. Then high doses of chemo called melphalan to destroy my immune system to 0 to eradicate all my good and bad cells (the paraprotein). Then they will put the good stem cells they harvested back in me and Ill hang out in the hospital or a few weeks or months until I am okay to venture out in to the world.
A BMT is like a new immune system, you are basically born again and people refer to it as your 0 birthday. I will be very immunocompromised, will need to get all my baby shots a year later because those all get wiped out like MMR, tetanus, etc. The hope that this worked. There have been less than 10 stem cell transplants for this condition done worldwide. It is extremely experimental. If I dont do it, then my skin will progressively get worse, my lungs will get worse, and I will need a double lung transplant in a few years, and then my lungs will fail again as we didnt fix the root cause. I just hope it all works. If it doesnt work, then I dont know what I will do. Neither do doctors really...
I am a dad now and have two beautiful baby girls. My wife also depends on me as a husband and man. I have too many responsibilities in life, and I just need to be there for my babies. I would love any and all positive vibes. You guys had me last time, and I know I havent been here, but I am asking for love and support again.
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Cliffs
- Had lymphoma 8 years ago, thought I was cured.
- It likely caused a paraprotein, like a myeloma, but not an actual cancer if that even makes sense, which has been slowly attacking me or the last 7 years very slowly and progressed quickly the last 2 years
- Lungs have been destroyed from 100% function to 30%
- Skin elasticity has been lost and compromised. Total body, not just my arms seen in the video. Imagine that... But everywhere.
- Rheumatoid arthritis from the protein is kicking in. I will have random aching joints daily. Extreme pain, and sometimes debilitating and I literally cannot walk.
- Getting a stem cell transplant, will spend some time in hospital, and then 3-6 months in isolation while my immune system recovers.
- If this doesnt work, I dont really have any other options. It has to kill this paraprotein, it has to...
- I just want as many god vibes as possible.
----------------------
If you know me in real life on FB, do not mention it there. None of my family outside my immediate fam knows anything yet. Please.
Video of skin below, imagine this, but whole body, and what it does to my outside skin, its also doing to my lungs right now. Doctors fear it could start attacking my heart next and destroying the aortic walls, etc.
https://drive.google.com/file/d/1Iws...ew?usp=sharing
Finally today, he confirmed that we will proceed with a stem cell transplant. Itll include 7 days of Neupogen shots to boost my bone marrow. Then 2-3 days of bone marrow collection. Then high doses of chemo called melphalan to destroy my immune system to 0 to eradicate all my good and bad cells (the paraprotein). Then they will put the good stem cells they harvested back in me and Ill hang out in the hospital or a few weeks or months until I am okay to venture out in to the world.
A BMT is like a new immune system, you are basically born again and people refer to it as your 0 birthday. I will be very immunocompromised, will need to get all my baby shots a year later because those all get wiped out like MMR, tetanus, etc. The hope that this worked. There have been less than 10 stem cell transplants for this condition done worldwide. It is extremely experimental. If I dont do it, then my skin will progressively get worse, my lungs will get worse, and I will need a double lung transplant in a few years, and then my lungs will fail again as we didnt fix the root cause. I just hope it all works. If it doesnt work, then I dont know what I will do. Neither do doctors really...
I am a dad now and have two beautiful baby girls. My wife also depends on me as a husband and man. I have too many responsibilities in life, and I just need to be there for my babies. I would love any and all positive vibes. You guys had me last time, and I know I havent been here, but I am asking for love and support again.
------------
Cliffs
- Had lymphoma 8 years ago, thought I was cured.
- It likely caused a paraprotein, like a myeloma, but not an actual cancer if that even makes sense, which has been slowly attacking me or the last 7 years very slowly and progressed quickly the last 2 years
- Lungs have been destroyed from 100% function to 30%
- Skin elasticity has been lost and compromised. Total body, not just my arms seen in the video. Imagine that... But everywhere.
- Rheumatoid arthritis from the protein is kicking in. I will have random aching joints daily. Extreme pain, and sometimes debilitating and I literally cannot walk.
- Getting a stem cell transplant, will spend some time in hospital, and then 3-6 months in isolation while my immune system recovers.
- If this doesnt work, I dont really have any other options. It has to kill this paraprotein, it has to...
- I just want as many god vibes as possible.
----------------------
If you know me in real life on FB, do not mention it there. None of my family outside my immediate fam knows anything yet. Please.
Video of skin below, imagine this, but whole body, and what it does to my outside skin, its also doing to my lungs right now. Doctors fear it could start attacking my heart next and destroying the aortic walls, etc.
https://drive.google.com/file/d/1Iws...ew?usp=sharing
~ In a world where you can be anything, be kind ~
07-23-2021, 09:02 AM
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#70
- wildchild11
- RIP Takeoff
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- wildchild11
- RIP Takeoff
- Join Date: Jun 2011
- Posts: 33,953
- Rep Power: 218794
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ill pray for you
pls do not associate my personalities in misc and sports misc
07-23-2021, 09:06 AM
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#71
07-23-2021, 09:11 AM
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#72
- LittleLexodus
- snailsrus
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- LittleLexodus
- snailsrus
- Join Date: Jun 2011
- Location: Chicago, Illinois United States
- Posts: 3,479
- Rep Power: 25664
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Wishing you the best and I'll pray for you bro. You can make it through this. I hope that procedure works out.
**Dallas Misc Crew**
No Fap Crew
Sunning my balls Crew
BJJ Crew
07-23-2021, 09:16 AM
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#73
- tranceNhouse
- One tall ass Polak
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- tranceNhouse
- One tall ass Polak
- Join Date: Nov 2011
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seen you around for years, you're a true legend OP. i don't think i would have had the courage to endure the stuff you been going through srs
6'5 master race.
****!!FLORIDA CREW!!****
****!!POLSKA CREW!!****
07-23-2021, 09:19 AM
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#74
07-23-2021, 09:19 AM
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#75
- Archangel_Lost
- Attention K-Mart shoppers
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- Archangel_Lost
- Attention K-Mart shoppers
- Join Date: Aug 2003
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- Posts: 58,036
- Rep Power: 148333
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I remember your old bout with cancer. And damn at vid, **** looks rough to have to deal with, would be very frustrated at no answers for that.
But good job being proactive seeking that treatment and good luck boyo. I prolly would’ve just grabbed a bottle and see if I could wrek my liver before my lungs gave out.
But good job being proactive seeking that treatment and good luck boyo. I prolly would’ve just grabbed a bottle and see if I could wrek my liver before my lungs gave out.
Lifts:
Squat: 460x1
Bench: 400x1
Deadlift: 575x1
OHP: 250x2
Weight: 180 lbs.
Don't have heroes; look up to no one. Because as long as someone's leading the way, the best you'll ever be is second.
07-23-2021, 09:20 AM
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#76
- leoslayer1
- Registered User
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- leoslayer1
- Registered User
- Join Date: Feb 2013
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- Age: 56
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Sending positive energy your way
U
07-23-2021, 09:22 AM
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#77
- Archheretic
- Registered User
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- Archheretic
- Registered User
- Join Date: Feb 2007
- Location: Norway
- Age: 38
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The best of wishes!
Former no-avi anonymous
07-23-2021, 09:32 AM
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#78
- byzantine75
- 柔靓家
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- byzantine75
- 柔靓家
- Join Date: Dec 2014
- Location: Perth, Australia
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- Rep Power: 99907
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So they basically will be restoring your internals back to factory settings?
Positive thoughts and prayers for you brah, u gonna make it
Positive thoughts and prayers for you brah, u gonna make it
Judo crew
Kyokushin crew
Pyrogen is gonna be my best man at my 5th wedding crew
07-24-2021, 09:09 AM
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#79
- ShayZ
- I can confirm I am title
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- ShayZ
- I can confirm I am title
- Join Date: Nov 2008
- Location: Grayson, Georgia, United States
- Age: 39
- Posts: 21,921
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Originally Posted By DrumsNotDead⏩
Thankfully I am there mentally for sure. I know what has to be done and I know in 2 years I will be better off then I am today.damn man that's terrible, but i think you knowing what it is or looks like it is is a great thing. now you have a battle plan. you seem to have the mental strength to beat this thing, just keep at it. the misc has your back all the way man, stay strong you got this and no matter what life takes from you just keep fighting and stay mentally strong.
Originally Posted By redraider86⏩
Yea! I didnt have crazy bone pains from them, it was quite mild, but I will def preorder some stuff just in case they get bad.I would never! My point was that you've got a great support system - and that I'm glad you finally have an answer.
Okay cool, I wasn't sure if you were familiar with them. Claritin helped a ton with the pain but not everyone deals with the side effects.
Okay cool, I wasn't sure if you were familiar with them. Claritin helped a ton with the pain but not everyone deals with the side effects.
Originally Posted By snailsrus⏩
Thanks man!Always feel free to message me if you need to talk. I’m a good listener and don’t give unsolicited advice. Here for you fam <3
Originally Posted By tranceNhouse⏩
I think we all have a path in life, and mine just makes things interesting at times. But I know everyone is going thru something. The grass always looks greener, so in the end I know I am lucky.seen you around for years, you're a true legend OP. i don't think i would have had the courage to endure the stuff you been going through srs
Originally Posted By MetroBrah⏩
Hell yea brother, what do you do now btw?You were one of my first inspirations for getting into side businesses and flipping stuff srs. Remember the cell phone screen covers? Stay strong bro
Originally Posted By Archangel_Lost⏩
lol. Mannn I had to stop drinking alcohol about 5 years ago. I would get hives allllll over my body when I drank literally anything. My body is not a fan of foreign substances at all.I remember your old bout with cancer. And damn at vid, **** looks rough to have to deal with, would be very frustrated at no answers for that.
But good job being proactive seeking that treatment and good luck boyo. I prolly would’ve just grabbed a bottle and see if I could wrek my liver before my lungs gave out.
But good job being proactive seeking that treatment and good luck boyo. I prolly would’ve just grabbed a bottle and see if I could wrek my liver before my lungs gave out.
Originally Posted By byzantine75⏩
Thats the amazing thing. The way he described it to me is incredible.So they basically will be restoring your internals back to factory settings?
Positive thoughts and prayers for you brah, u gonna make it
Positive thoughts and prayers for you brah, u gonna make it
7-10 days of Neupogen which boosts your WBC, RBC, platelets etc.
2-3 days of stem cell harvesting. Basically they put a PICC line on you, three tubes coming out of your chest. It goes into a big centrifuge and that machine splits your blood into wbc, rbc, platelet etc into other tubes.
You literally see them splitting up each type of blood cell and harvest the good ones.
Then 2 days of Melphalan chemo to destroy all your cells.
Then they start putting the good cells back in you while your body regrafts the new cells.
It is incredible, modern medicine man...
RIP mainsqueeze530
y u leave us so early bro?
07-24-2021, 09:13 AM
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#80
07-24-2021, 09:42 AM
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#81
- byzantine75
- 柔靓家
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- byzantine75
- 柔靓家
- Join Date: Dec 2014
- Location: Perth, Australia
- Posts: 6,953
- Rep Power: 99907
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"Thats the amazing thing. The way he described it to me is incredible.
7-10 days of Neupogen which boosts your WBC, RBC, platelets etc.
2-3 days of stem cell harvesting. Basically they put a PICC line on you, three tubes coming out of your chest. It goes into a big centrifuge and that machine splits your blood into wbc, rbc, platelet etc into other tubes.
You literally see them splitting up each type of blood cell and harvest the good ones.
Then 2 days of Melphalan chemo to destroy all your cells.
Then they start putting the good cells back in you while your body regrafts the new cells.
It is incredible, modern medicine man..."
This is probably the only occasion where I would say "trust the science" this year lol
It is truly amazing what humans are capable of on both sides of the spectrum (good and bad)
I'm sure this treatment will be successful and it will give you a new lease on life boyo
Best of luck and keep us updated on your progress
7-10 days of Neupogen which boosts your WBC, RBC, platelets etc.
2-3 days of stem cell harvesting. Basically they put a PICC line on you, three tubes coming out of your chest. It goes into a big centrifuge and that machine splits your blood into wbc, rbc, platelet etc into other tubes.
You literally see them splitting up each type of blood cell and harvest the good ones.
Then 2 days of Melphalan chemo to destroy all your cells.
Then they start putting the good cells back in you while your body regrafts the new cells.
It is incredible, modern medicine man..."
This is probably the only occasion where I would say "trust the science" this year lol
It is truly amazing what humans are capable of on both sides of the spectrum (good and bad)
I'm sure this treatment will be successful and it will give you a new lease on life boyo
Best of luck and keep us updated on your progress
Judo crew
Kyokushin crew
Pyrogen is gonna be my best man at my 5th wedding crew
07-24-2021, 09:45 AM
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#82
- jordanair45
- Picture Me Rowin'
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- jordanair45
- Picture Me Rowin'
- Join Date: Apr 2006
- Location: California, United States
- Posts: 5,255
- Rep Power: 10175
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Sending good vibes man. We gonna make it
"The more I began to lift weights, the more I became addicted to the feeling of being bigger and stronger."
07-24-2021, 09:53 AM
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#83
07-24-2021, 09:57 AM
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#84
- EDcellent
- You too
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- EDcellent
- You too
- Join Date: May 2009
- Location: Connecticut, United States
- Posts: 14,086
- Rep Power: 140306
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I think I remember you years back, OP. You had ebay and amazon stores selling phone parts, and other things, right? You helped me get involved in phone repairs and flipping broken ones as a side hustle back then.
I'm sorry to hear about all you're going through. I know the misc is a roller coaster at times, but I'd like to think that this is a tight knit group, and we're here for each other. I sincerely hope you get through this, and you have my support and reps IRL.
I'm sorry to hear about all you're going through. I know the misc is a roller coaster at times, but I'd like to think that this is a tight knit group, and we're here for each other. I sincerely hope you get through this, and you have my support and reps IRL.
07-24-2021, 10:01 AM
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#85
07-24-2021, 10:04 AM
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#86
07-24-2021, 10:58 AM
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#87
07-25-2021, 12:20 PM
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#88
- pUniCepts
- not considered normal
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- pUniCepts
- not considered normal
- Join Date: Nov 2010
- Age: 55
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Originally Posted By ShayZ⏩
good to hear. Finally watched the video, and got a chuckle at the end when you talk about looking like 35% bodyfat.Honestly, finding out what I had after so many years was a massive relief... I even went to Mayo Clinic 3 years ago and they had noooo clue. Granted it had not progressed to this current level, but yes... Finally having an answer, and some hope to stop this progression means the world to me. I am so blessed and thankful. If this happened even 10 years ago I imagine that I would not find out what I have since it is so rare.
Last I heard YG had a couple kids and had settled down to only clapping one pair of cheeks.
☆ MissChill Appreciation Crew ☆ Owner ☆ Σ ☆
07-25-2021, 12:58 PM
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#89
- BornagaininUES
- WTF at this world
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- BornagaininUES
- WTF at this world
- Join Date: Aug 2020
- Posts: 5,280
- Rep Power: 13828
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Man I read your thread and it just hit me on the head around how I need to learn to be gratetful. Health is a great thing to have until it is gone out of whack and makes you grateful real quick. I can understand in a way how stressful it must have been for you as you were researching this disease, hoping on one end that you come up with some good news but on the other fearing that you might get some worse news as well. I am glad that you have somewhat of a resolution here.
As far as I know, this can happen to ANY one of us on here. I hope it all goes well for you not only because I want you to do well but because once it does, you can be a guide for us all too if we were to encounter anything like this.
As far as I know, this can happen to ANY one of us on here. I hope it all goes well for you not only because I want you to do well but because once it does, you can be a guide for us all too if we were to encounter anything like this.
07-26-2021, 10:06 AM
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#90
- sword_
- uberschwert
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- sword_
- uberschwert
- Join Date: May 2005
- Location: Texas, United States
- Posts: 107,635
- Rep Power: 912964
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Love you brother. I know you can fight and WIN this.
A hit was sent, from the President, to raid your residence /
Because you had secret evidence, and documents /
On how they raped the continents, and it's the prominent /
Dominant Islamic, Asiatic Black Hebrew
- GZA "4th Chamber"
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